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Embracing the DIGNITY of Resident Relationships: A Case Study of the Decision-Making in Aging and Dementia for Autonomy (DIGNITY) Protocol

  • Liza Behrens
  • , Karolus Wangi
  • , Caroline Madrigal
  • , Mary Lou Ciolfi
  • , Joanne Roman Jones
  • , Susan Ryan
  • , Nicole Osevala
  • , Betsy Kemeny
  • , Allison Myers
  • , Nicole Sarver
  • Pennsylvania State University
  • Department of Veterans Affairs
  • University of Maine
  • AgingIN
  • Slippery Rock University of Pennsylvania
  • Allison Myers is Nursing Home Administrator and Nicole Sarver is Chief Executive Officer

Research output: Contribution to journal › Article › peer-review

Abstract

Public policies governing U.S. nursing homes emphasize resident rights, autonomy, and person-centered care, yet translating these principles into everyday practice remains challenging–particularly for residents living with dementia whose preferences involve perceived risk. Regulatory requirements, liability concerns, and inconsistent interpretations of decision-making capacity often constrain staff ability to honor resident choice. This case study examines the application of the Decision-making in Aging and Dementia for Autonomy (DIGNITY) protocol, a structured, evidence-based framework designed to support shared decision-making within regulated long-term care environments. Using a resident-to-resident relationship preference as an illustrative case, the study demonstrates how the DIGNITY protocol guides interdisciplinary decision-making through systematic preference assessment, decision-specific capacity evaluation, risk-benefit analysis, documentation, family engagement, and collaboration with organizational leadership and regulators. The case highlights policy-relevant challenges, including the inappropriate reliance on cognitive screening tools such as the Brief Interview for Mental Status (BIMS) as proxies for decision-making capacity. Findings underscore the importance of clear organizational policies, staff training, and leadership engagement to align person-centered care with regulatory expectations. This case study illustrates how structured decision-making protocols can operationalize resident rights, support autonomy, and mitigate risk, offering a practical model for policy implementation in nursing home dementia care.

Original languageEnglish
JournalJournal of Aging and Social Policy
DOIs
StateAccepted/In press - 2026

ASJC Scopus Subject Areas

  • Demography
  • Gerontology
  • Life-span and Life-course Studies

Keywords

  • Decision-making capacity
  • dementia
  • nursing homes
  • person-centered care
  • resident autonomy
  • risk management
  • safety
  • shared decision-making

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