Measuring the impact of burn injury on the parent-reported health outcomes of children 1-to-5 years: Item pool development for the Preschool1–5 Life Impact Burn Recovery Evaluation (LIBRE) Profile

Gabrielle G. Grant; Keri J.S. Brady; Frederick J. Stoddard; Walter J. Meyer; Kathleen S. Romanowski; Philip H. Chang; Lynda E. Painting; Laura A. Fowler; Judith K. Nelson; Khushbu F. Patel; R. Christopher Sheldrick; Alice Carter; Robert L. Sheridan; Mary D. Slavin; Petra Warner; Tina L. Palmieri; Jeffrey C. Schneider; Lewis E. Kazis; Colleen M. Ryan

doi:10.1016/j.burns.2021.02.010

Measuring the impact of burn injury on the parent-reported health outcomes of children 1-to-5 years: Item pool development for the Preschool_1–5 Life Impact Burn Recovery Evaluation (LIBRE) Profile

Gabrielle G. Grant
, Keri J.S. Brady
, Frederick J. Stoddard
, Walter J. Meyer
, Kathleen S. Romanowski
, Philip H. Chang
, Lynda E. Painting
, Laura A. Fowler
, Judith K. Nelson
, Khushbu F. Patel
, R. Christopher Sheldrick
, Alice Carter
, Robert L. Sheridan
, Mary D. Slavin
, Petra Warner
, Tina L. Palmieri
, Jeffrey C. Schneider
, Lewis E. Kazis
, Colleen M. Ryan

Psychology

Shriners Hospitals for Children
Massachusetts General Hospital
University of North Carolina at Chapel Hill
Boston University
Harvard University
University of Texas Medical Branch at Galveston
University of California at Davis
Cornell University
University of Cincinnati
Spaulding Rehabilitation Hospital
Spaulding Research Institute

Research output: Contribution to journal › Article › peer-review

Abstract

Modern, reliable, and valid outcome measures are essential to understanding the health needs of young children with burn injuries. Burn-specific and age-appropriate legacy assessment tools exist for this population but are hindered by the limitations of existing paper-based instruments. The purpose of this study was to develop item pools comprised of questions appropriate for children aged 1–5 with burn injuries. Item development was based on a framework provided by previous work to develop the Preschool Life Impact Burn Recovery Evaluation (LIBRE) Conceptual Model. The Preschool LIBRE Conceptual Model work established four sub-domains of functioning for children with burns aged 1–5. Item development involved a systematic literature review, a qualitative item review process with clinical experts, and parent cognitive interviews. Four item pools were established: (1) communication and language development; (2) physical functioning; (3) psychological functioning and (4) social functioning for preschool-aged children with burn injuries. We selected and refined candidate items, recall periods, survey instructions, and response option choices through clinical and parental feedback during the qualitative review and cognitive interview processes. Item pools are currently being field-tested as part of the process to calibrate and validate the Preschool_1–5 LIBRE Computer Adaptive Test (CAT) Profile.

Original language	English
Pages (from-to)	1511-1524
Number of pages	14
Journal	Burns
Volume	47
Issue number	7
DOIs	https://doi.org/10.1016/j.burns.2021.02.010
State	Published - Nov 2021

ASJC Scopus Subject Areas

Surgery
Emergency Medicine
Critical Care and Intensive Care Medicine

Keywords

Burn injury
Health outcomes metrics
Item pool development
Patient-reported outcomes measure
Pediatric burn outcomes

Access to Document

10.1016/j.burns.2021.02.010

Cite this

Grant, G. G., Brady, K. J. S., Stoddard, F. J., Meyer, W. J., Romanowski, K. S., Chang, P. H., Painting, L. E., Fowler, L. A., Nelson, J. K., Patel, K. F., Sheldrick, R. C., Carter, A., Sheridan, R. L., Slavin, M. D., Warner, P., Palmieri, T. L., Schneider, J. C., Kazis, L. E., & Ryan, C. M. (2021). Measuring the impact of burn injury on the parent-reported health outcomes of children 1-to-5 years: Item pool development for the Preschool_1–5 Life Impact Burn Recovery Evaluation (LIBRE) Profile. Burns, 47(7), 1511-1524. https://doi.org/10.1016/j.burns.2021.02.010

Measuring the impact of burn injury on the parent-reported health outcomes of children 1-to-5 years: Item pool development for the Preschool_1–5 Life Impact Burn Recovery Evaluation (LIBRE) Profile. / Grant, Gabrielle G.; Brady, Keri J.S.; Stoddard, Frederick J. et al.
In: Burns, Vol. 47, No. 7, 11.2021, p. 1511-1524.

Research output: Contribution to journal › Article › peer-review

Grant, GG, Brady, KJS, Stoddard, FJ, Meyer, WJ, Romanowski, KS, Chang, PH, Painting, LE, Fowler, LA, Nelson, JK, Patel, KF, Sheldrick, RC, Carter, A, Sheridan, RL, Slavin, MD, Warner, P, Palmieri, TL, Schneider, JC, Kazis, LE & Ryan, CM 2021, 'Measuring the impact of burn injury on the parent-reported health outcomes of children 1-to-5 years: Item pool development for the Preschool_1–5 Life Impact Burn Recovery Evaluation (LIBRE) Profile', Burns, vol. 47, no. 7, pp. 1511-1524. https://doi.org/10.1016/j.burns.2021.02.010

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abstract = "Modern, reliable, and valid outcome measures are essential to understanding the health needs of young children with burn injuries. Burn-specific and age-appropriate legacy assessment tools exist for this population but are hindered by the limitations of existing paper-based instruments. The purpose of this study was to develop item pools comprised of questions appropriate for children aged 1{\textendash}5 with burn injuries. Item development was based on a framework provided by previous work to develop the Preschool Life Impact Burn Recovery Evaluation (LIBRE) Conceptual Model. The Preschool LIBRE Conceptual Model work established four sub-domains of functioning for children with burns aged 1{\textendash}5. Item development involved a systematic literature review, a qualitative item review process with clinical experts, and parent cognitive interviews. Four item pools were established: (1) communication and language development; (2) physical functioning; (3) psychological functioning and (4) social functioning for preschool-aged children with burn injuries. We selected and refined candidate items, recall periods, survey instructions, and response option choices through clinical and parental feedback during the qualitative review and cognitive interview processes. Item pools are currently being field-tested as part of the process to calibrate and validate the Preschool1{\textendash}5 LIBRE Computer Adaptive Test (CAT) Profile.",

keywords = "Burn injury, Health outcomes metrics, Item pool development, Patient-reported outcomes measure, Pediatric burn outcomes",

author = "Grant, \{Gabrielle G.\} and Brady, \{Keri J.S.\} and Stoddard, \{Frederick J.\} and Meyer, \{Walter J.\} and Romanowski, \{Kathleen S.\} and Chang, \{Philip H.\} and Painting, \{Lynda E.\} and Fowler, \{Laura A.\} and Nelson, \{Judith K.\} and Patel, \{Khushbu F.\} and Sheldrick, \{R. Christopher\} and Alice Carter and Sheridan, \{Robert L.\} and Slavin, \{Mary D.\} and Petra Warner and Palmieri, \{Tina L.\} and Schneider, \{Jeffrey C.\} and Kazis, \{Lewis E.\} and Ryan, \{Colleen M.\}",

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