Parental perceptions of disease-severity and health-related quality of life in school-age children with congenital heart disease

  • Kristine M. Ruggiero
  • , Patricia A. Hickey
  • , Robin R. Leger
  • , Judith A. Vessey
  • , Laura L. Hayman

Research output: Contribution to journalArticlepeer-review

Original languageEnglish
Article numbere12204
JournalJournal for Specialists in Pediatric Nursing
Volume23
Issue number1
DOIs
StatePublished - Jan 2018

ASJC Scopus Subject Areas

  • Pediatrics

Keywords

  • care coordination
  • children with chronic illness
  • congenital heart disease (CHD)
  • disease-severity
  • family-centered care
  • health status
  • health-related quality of life (HRQOL)
  • parent-proxy report
  • pediatric
  • Pediatric Quality of Life Inventory Scale (PedsQL)

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